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Imagine waking up, suddenly blind and paralyzed! It happened to “patient h69” in this gripping story of one women's quest to understand her unique neurological illness and recover from it.
In 2012, Vanessa Potter, a married advertising film producer with two young children, was stricken by Neuromyelitis Optica Spectrum Disorder (NMOSD), a rare illness that resulted in sudden blindness and paralysis. Over the next five months, she regained mobility, but recovering her sight was more problematic. At first what she saw was monochromatic. As color reappeared, she encountered synesthesia (experiencing odd responses to stimuli, such as hearing inanimate objects talk to her). While a team of neurobiologists, psychologists, immunologists, and developmental biologists treated her, she blogged and kept audio-diaries, using the pen-name Patient H69.
In her own words, Vanessa reveals the terror and torment of her blindness. Supported by neuroscientists and Britain's National Health Service, Vanessa became a science sleuth, uncovering some of the innermost functions of the brain and our complex visual system, while learning meditation and self-hypnosis to help herself endure the ordeal and make a miraculous recovery.
Her case offered scientists an important, and previously inaccessible, window into the process of early visual development, as her own optic nerves self-repaired and her brain went into overdrive. Patient H69 is a gripping human story, made all the more real by the unique response of one patient and the science she uncovers.
Published | Jul 25 2017 |
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Format | Hardback |
Edition | 1st |
Extent | 272 |
ISBN | 9781472936103 |
Imprint | Bloomsbury Sigma |
Illustrations | 8pp colour plate section and some bw diagrams |
Dimensions | 9 x 5 inches |
Publisher | Bloomsbury Publishing |
Patient H69 reads like a thriller ... It is an extraordinary book. What begins as a surreal nightmare of decline becomes a rallying triumph of will and spirit.
The Times
For once, the adjectives slathered on a Dramatic First-Person Journey (raw, candid, tragic, inspiring) are warranted.
Times Higher Education Supplement
Follows this indomitable woman's struggles to win back her sight.
The Times, Saturday Review
This book reminds us to treasure the gift of sight.
The Time, Saturday Review
Brilliant, insightful, and inspiring. As Potter explores the science behind her condition, she celebrates the remarkable adaptability and flexibility of the human brain and gives us tools to overcome even the deepest traumas.
Susan R. Barry, author of Fixing My Gaze: A Scientist's Journey into Seeing in Three Dimensions
Part patient diary, part journey into and out of blindness, part popular science book, this is an engaging and at times heart-breakingly sad account of what can happen when we lose our sight. A must read for anyone who does not see the world as others do and who wants to know why.
Hannah Thompson, Reader at Royal Holloway, University of London, and author of the Blind Spot blog
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